Login / Signup

The sleep problems in individuals with Rett syndrome and their caregivers.

Cheng-Hsien HuangLee-Chin WongYen-Ju ChuChia-Jui HsuHsin-Pei WangWen-Che TsaiWang-Tso Lee
Published in: Autism : the international journal of research and practice (2024)
Sleep problems are common and impactful among individuals with Rett syndrome (RTT) and their caregivers. We examined the sleep patterns of 29 RTT patients and their primary caregivers using various assessment tools. The study found that a majority of the patients experienced sleep disturbances, with younger patients showing more sleep difficulties. Caregivers also reported poor sleep quality. The findings emphasize the need to address sleep problems in RTT management, as improving sleep quality can positively impact the well-being of individuals with RTT and their caregivers.
Keyphrases
  • sleep quality
  • end stage renal disease
  • physical activity
  • palliative care
  • ejection fraction
  • depressive symptoms
  • newly diagnosed
  • chronic kidney disease
  • peritoneal dialysis
  • patient reported outcomes
  • case report