Storytelling of Indigenous patient and family advocates engaged in patient-oriented research initiatives in the field of inflammatory bowel disease.
Rhonda SandersonLinda PorterRobert PorterColten BrassDerek JenningsMichelle Johnson-JenningsMustafa AndkhoieGermain Bukassa-KazadiSharyle FowlerJose Diego Marques SantosJessica Amankwah OseiCarol-Lynne QuintinUlrich TeucherJuan-Nicolás Peña-SánchezPublished in: Journal of the Canadian Association of Gastroenterology (2023)
Indigenous patient engagement in health research is crucial to ensure that lived experiences, knowledge, and cultural values are adequately adopted to improve research outcomes. Centering IPFAs in IBD research can promote cultural awareness and actionable recommendations to improve health outcomes for individuals with IBD and their families and caregivers.