Neuro-oncology clinicians' perspectives on factors affecting brain cancer patients' access to medical assistance in dying: A qualitative study.
Caroline VariathSeth Andrew ClimansKim EdelsteinJennifer A H BellPublished in: Death studies (2022)
In most jurisdictions where medical assistance in dying (MAiD) is legal, patients must have decision-making capacity. Brain cancer often damages the cognitive networks required to maintain decision-making capacity. Using qualitative methodology guided by a relational ethics conceptual framework, this study explored neuro-oncology clinicians' perspectives on access to and eligibility for MAiD for patients diagnosed with brain cancer. We interviewed 24 neuro-oncology clinicians from 6 countries. Participants described the unique challenges facing brain cancer patients, potentially resulting in their inequitable access to MAiD. The findings highlight the importance of early end-of-life conversations, advance care planning, and access to end-of-life treatment options.
Keyphrases
- palliative care
- end stage renal disease
- decision making
- white matter
- ejection fraction
- healthcare
- chronic kidney disease
- advance care planning
- public health
- papillary thyroid
- prognostic factors
- peritoneal dialysis
- systematic review
- squamous cell carcinoma
- cerebral ischemia
- machine learning
- patient reported outcomes
- young adults
- subarachnoid hemorrhage
- patient reported