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Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease.

Ashima SinghMahua DasGuptaPippa M SimpsonJulie A Panepinto
Published in: Pediatric blood & cancer (2019)
The new PROMIS domains of physical stress experience, strength impact, pain behavior, and pain quality sensory domains are valid and reliable for children with SCD. The low-moderate agreement between parent-proxy and child self-report scores support the complementary information provided by the two perspectives.
Keyphrases
  • chronic pain
  • mental health
  • pain management
  • neuropathic pain
  • physical activity
  • young adults
  • patient reported outcomes
  • social media
  • health information
  • heat stress