Use of the new pediatric PROMIS measures of pain and physical experiences for children with sickle cell disease.
Ashima SinghMahua DasGuptaPippa M SimpsonJulie A PanepintoPublished in: Pediatric blood & cancer (2019)
The new PROMIS domains of physical stress experience, strength impact, pain behavior, and pain quality sensory domains are valid and reliable for children with SCD. The low-moderate agreement between parent-proxy and child self-report scores support the complementary information provided by the two perspectives.