Under-utilisation of reproducible, child appropriate or patient reported outcome measures in childhood uveitis interventional research.
Ameenat L SoleboRobert J BarryPearse A KeaneJugnoo S RahiAlastair Keith DennistonPublished in: Orphanet journal of rare diseases (2019)
This review of outcome measures in childhood uveitis interventional trials has identified under-utilisation of reproducible or child appropriate measures, and considerable heterogeneity in metric type, and structure. Clinicians and researchers interested in improving outcomes for affected children must identify a patient and family centred core outcome set, and work to validate both objective and patient (or proxy) reported disease age appropriate outcome measures.