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What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents.

Cari MalcolmKatherine Knighting
Published in: Palliative medicine (2021)
Parents with experience of caring for a dying child at home offer valuable input to future the policy and practice surrounding effective home-based, end-of-life care for children. New models of care or service developments should consider the key components and attributes for effective home-based end-of-life identified by bereaved parents in this study.
Keyphrases
  • healthcare
  • mental health
  • young adults
  • palliative care
  • public health
  • quality improvement
  • pain management
  • current status
  • health insurance
  • affordable care act