The role of experiential knowledge within attitudes towards genetic carrier screening: A comparison of people with and without experience of spinal muscular atrophy.
Felicity K BoardmanPhilip J YoungOliver WarrenFrances E GriffithsPublished in: Health expectations : an international journal of public participation in health care and health policy (2017)
This study underscores the significance of prior experience with the condition to screening attitudes. It highlights the need for accurate and high-quality educational resources to support any future carrier screening programmes, that particularly in relation to rare genetic disorders like SMA that will fall outside the remit of everyday experience for the majority of the population.