"You have to know why you're doing this": a mixed methods study of the benefits and burdens of self-tracking in Parkinson's disease.
Sara RiggareTherese Scott DuncanHelena HvitfeldtMaria HägglundPublished in: BMC medical informatics and decision making (2019)
The main identified benefits are that self-tracking gives PwP a deeper understanding of their own specific manifestations of PD and contributes to a more effective decision making regarding their own selfcare. The process of self-tracking also enables PwP to be more active in communicating with healthcare. Tracking takes a lot of work and there is a need to find the right balance between burdens and benefits.
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