Core outcomes in neonatal encephalopathy: a qualitative study with parents.
Fiona A QuirkeShabina AriffMalcolm R BattinCaitlin BernardFrank Harry BloomfieldMandy DalyDeclan DevaneDavid M HaasPatricia HealyTim HurleyVincent KibetJamie J KirkhamSarah KoskeiShireen MeherEleanor MolloyMaira NiazElaine Ní BhraonáinChristabell Omukagah OkarononFarhana TabassumKaren WalkerLinda BiestyPublished in: BMJ paediatrics open (2022)
This study provides insight into the outcomes that parents of infants diagnosed with neonatal encephalopathy have identified as the most important, to be considered in the process of developing a COS for the treatment of neonatal encephalopathy. We also provide description of the processes employed to ensure the inclusion of participants from LMiCs as well as HiCs.