Swedish parents' experiences of their role in treatment for children with congenital limb reduction deficiency: Decision-making and treatment support.
Lis SjobergLiselotte M HermanssonHelen LindnerCarin FredrikssonPublished in: Child: care, health and development (2020)
This study enhances our understanding of the parental role in decision-making and treatment for children with congenital limb reduction deficiency. The results may contribute to the continued development of the family-centred service approach by providing guidelines for treatment programmes, with the goal of improving decision support and broadening the support for parents during treatment for these children.