The Power of Patient Engagement With Electronic Health Records as Research Participants.
Jeff B PawelekKatie Baca-MotesJay A PanditBenjamin B BerkEdward RamosPublished in: JMIR medical informatics (2022)
Electronic health record (EHR) technology has become a central digital health tool throughout health care. EHR systems are responsible for a growing number of vital functions for hospitals and providers. More recently, patient-facing EHR tools are allowing patients to interact with their EHR and connect external sources of health data, such as wearable fitness trackers, personal genomics, and outside health services, to it. As patients become more engaged with their EHR, the volume and variety of digital health information will serve an increasingly useful role in health care and health research. Particularly due to the COVID-19 pandemic, the ability for the biomedical research community to pivot to fully remote research, driven largely by EHR data capture and other digital health tools, is an exciting development that can significantly reduce burden on study participants, improve diversity in clinical research, and equip researchers with more robust clinical data. In this viewpoint, we describe how patient engagement with EHR technology is poised to advance the digital clinical trial space, an innovative research model that is uniquely accessible and inclusive for study participants.
Keyphrases
- electronic health record
- healthcare
- health information
- clinical decision support
- adverse drug
- end stage renal disease
- social media
- clinical trial
- public health
- ejection fraction
- newly diagnosed
- chronic kidney disease
- case report
- prognostic factors
- peritoneal dialysis
- blood pressure
- risk factors
- health promotion
- heart rate
- machine learning
- deep learning
- patient reported