Model consent clauses for rare disease research.

Minh Thu NguyenJack GoldblattRosario IsasiMarlene JagutAnneliene Hechtelt JonkerPetra KaufmannLaetitia OuilladeFruszina Molnar-GaborMahsa ShabaniEric SidAnne Marie TasséDurhane Wong-RiegerBartha Maria Knoppersnull null

Published in: BMC medical ethics (2019)

The model consent clauses presented in this article have been drafted to highlight consent elements that bear in mind the trends in rare disease research, while providing a tool to help foster harmonization and collaborative efforts.

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