Lower airway clinical outcome measures for use in primary ciliary dyskinesia research: a scoping review.
Florian GahleitnerJames ThompsonClaire L JacksonJana F HueppeLaura BehanEleonora DehlinkMyrofora GoutakiFlorian Samuel HalbeisenAna Paula L QueirozGuillaume ThouveninClaudia Elisabeth KuehniPhilipp LatzinJane S A LucasBruna RubboPublished in: ERJ open research (2021)
This review highlights the need for standardisation of measurements and reporting of outcome measures to enable comparisons between studies. Defining a core set of clinical outcome measures is necessary to ensure reproducibility of results and for use in future trials and prospective cohorts.