'I feel that I should decide on my own….': who should be involved in the decision-making process for adolescent involvement in HIV research?

Ferdinand C MukumbangKristen Beima-SofieJillian NearyHuangqianyu LiKawango AgotElise HealyKate S WilsonJacinta BadiaJames KibugiIrene InwaniNok ChhunGrace John-StewartPamela KohlerSeema K Shah

Published in: BMJ global health (2023)

While research teams and HCWs felt that adolescents and caregivers should jointly make research decisions, ALHs and caregivers generally felt individuals should make decisions. As ALHs sometimes find caregiver support lacking, improving family dynamics might enhance research engagement.

Keyphrases

young adults
decision making
palliative care
antiretroviral therapy
hiv positive
hiv infected
human immunodeficiency virus
hiv testing
hepatitis c virus
mental health
physical activity
social media
hiv aids
men who have sex with men
south africa