Direct and indirect costs and cost-driving factors of Tuberous sclerosis complex in children, adolescents, and caregivers: a multicenter cohort study.

Janina GrauJohann Philipp ZöllnerSusanne Schubert-BastGerhard KurlemannChristoph HertzbergAdelheid Wiemer-KruelThomas BastAstrid BertscheUlrich BettendorfBarbara FiedlerAndreas HahnHans HartmannFrauke HornemannIlka ImmischJulia JacobsMatthias KieslichKarl Martin KleinKerstin A KlotzGerhard KlugerMarkus KnufThomas MayerKlaus MarquardSascha MeyerHiltrud MuhleKaren Müller-SchlüterAnna H NodaSusanne RufMatthias SauterJan-Ulrich SchlumpSteffen SyrbeCharlotte ThielsRegina TrollmannBernd WilkenLaurent M WillemsFelix RosenowAdam Strzelczyk

Published in: Orphanet journal of rare diseases (2021)

DRKS, DRKS00016045. Registered 01 March 2019, http://www.drks.de/DRKS00016045.

Keyphrases

young adults
palliative care
physical activity
clinical trial
temporal lobe epilepsy