Increasing Visibility of Sickle Cell Disease in Indiana: Establishing Baseline Prevalence Using Integrated Data From Multiple Sources.
Amanda I OkoloSeethal A JacobBrian Edward DixonNimish R ValviIsaac A JansonBrandon M HardestyPublished in: Public health reports (Washington, D.C. : 1974) (2023)
Our results establish a baseline for the IN-SCDC program. Baseline and future surveillance program efforts will help accurately inform standards of care for treatments, identify gaps in coverage and access to care, and provide guidance for legislators and community-based organizations.