Patient-perceived progression in multiple system atrophy: natural history of quality of life.
Tiphaine SaulnierMargherita FabbriMélanie Le GoffCatherine HelmerAnne Pavy-Le TraonWassilios G MeissnerOlivier RascolCecile Proust-LimaAlexandra Foubert-SamierPublished in: Journal of neurology, neurosurgery, and psychiatry (2024)
The multidimensional Hr-QoL deteriorates progressively over the course of MSA and brings essential knowledge for improving patient care. As exemplified with MSA, the thorough description of Hr-QoL over time using the four-step strategy can provide perspectives on neurodegenerative diseases' management to ultimately deliver better support focused on the patient's perspective.