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A Mobile Health Platform for Self-Management of Pediatric Cystic Fibrosis: Qualitative Study of Adaptation to Stakeholder Needs and Integration in Clinical Settings.

Sarah B RutlandRikard Palmer BergquistAndreas HagerRobin GeursCathy MimsHector H GutierrezGabriela R Oates
Published in: JMIR formative research (2021)
This study demonstrated the importance of identifying the needs and preferences of target users and stakeholders before adopting existing mHealth solutions. All relevant perspectives, including those of clinicians, patients, and caregivers, should be thoroughly considered to meet both end users' needs and evidence-based practice recommendations.
Keyphrases
  • cystic fibrosis
  • end stage renal disease
  • palliative care
  • ejection fraction
  • chronic kidney disease
  • prognostic factors
  • peritoneal dialysis
  • lung function
  • young adults
  • decision making
  • air pollution