Patients', carers' and healthcare providers' views of patient-held health records in Kerala, India: A qualitative exploratory study.

Linju M JosephSheila GreenfieldSemira Manaseki-HollandLekha T RSujakumari SJeemon PanniyammakalAnna Lavis

Published in: Health expectations : an international journal of public participation in health care and health policy (2023)

Patients and carers were involved during the pilot testing of topic guides, consent and study information sheets. Patients and carers gave their feedback on the materials to ensure clarity and appropriateness within the context.

Keyphrases

end stage renal disease
healthcare
ejection fraction
chronic kidney disease
newly diagnosed
prognostic factors
peritoneal dialysis
patient reported outcomes
clinical trial
mental health
health information
social media
study protocol
human health