Canadian patient experiences of lupus nephritis: a qualitative analysis.
Francesca S CardwellSusan J ElliottMegan R W BarberKim CheemaSydney GeorgeAdrian BoucherAnn Elaine ClarkePublished in: Lupus science & medicine (2023)
The unpredictability of living with LN, the heavy treatment burden and a lack of patient/societal awareness substantially affect the lived experience of LN. These findings will inform the development of LN-specific patient resources to increase understanding of LN and improve well-being for patients.