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"The Patient Should Have a Choice": Adults with Sickle Cell Disease Advise Integration of Telemedicine into the Comprehensive Sickle Cell Disease Care Model.

Lydia H PeckerElizabeth RuvalcabaSophie LanzkronMichelle N Eakin
Published in: Journal of racial and ethnic health disparities (2023)
Telemedicine appeals to adults with SCD for maintenance SCD care. Decisions about in-person or telemedicine care need to be made in discussion with the patient with particular attention to pain management preferences. Ultimately, telemedicine is an option that adults with SCD would like to see continue and that has the potential to expand access to care to more geographically distant regions.
Keyphrases
  • pain management
  • healthcare
  • palliative care
  • sickle cell disease
  • quality improvement
  • case report
  • chronic pain
  • working memory
  • decision making