Minding the gap: identifying values to enable public and patient involvement at the pre-commencement stage of research projects.
Éidín Ní ShéJennifer CassidyCarmel DaviesAoife De BrúnSarah DonnellyEmma DorrisNikki DunneKaren EganMichel FoleyMary GalvinMary HarkinMartha KillileaThilo KrollVanessa LaceyVeronica LambertSarah McLoughlinDerick MitchellEdel MurphyPurity MwendwaEmma NicholsonDeirdre O'DonnellLaura O'PhilbinPublished in: Research involvement and engagement (2020)
This work via majority consensus identified four values of respect, openness, reciprocity, and flexibility for the pre-commencement stage. These values should be used to support inclusive, effective and collective PPI across all stages of involvement. We hope this work will stimulate further action in this area. In particular, we would welcome the evaluation of these values involving diverse PPI groups.