Diagnosis of DSD in Children-Development of New Tools for a Structured Diagnostic and Information Management Program within the Empower-DSD Study.
Katja WechsungLouise MarshallMartina JürgensenUta Neumannnull On Behalf Of The Empower-Dsd Study GroupPublished in: Journal of clinical medicine (2022)
The new information management offers guidance for patients and professionals during the first weeks after a DSD diagnosis is suspected. The developed tools' evaluation will provide further insight into the diagnostic and information-sharing process as well as into all of the involved stakeholders' needs.