Parent Engagement and Agency in Latin American Childhood Cancer Treatment: A Qualitative Investigation.
Maria Fernanda Olarte-SierraNuria RossellMarcela ZubietaJulia ChallinorPublished in: JCO global oncology (2021)
In Latin America, engagement materializes in ways that are not necessarily reflected in existing literature from HICs and, thus, engagement may seem nonexistent. Health care teams' recognition of parents' substantial sacrifices to adhere to complex demands as treatment engagement, may positively impact the children's (and family's) quality of life, treatment experience, adherence, and posttreatment circumstances.