Examining tools for assessing the impact of chronic pain on emotional functioning in children and young people with cerebral palsy: stakeholder preference and recommendations for modification.

Meredith Grace Smith Rachel J Gibson Remo N Russo Sophie Karanicolas Adrienne R Harvey

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)

Potential modifications have been identified to improve the appropriateness and feasibility of the FOPQ-C-SF and mBPI for children and young people with CP. Future research should implement and test these modifications, prioritising the involvement of people with lived experience to ensure their needs are met alongside clinicians.

Keyphrases

chronic pain
cerebral palsy
young adults
palliative care
tyrosine kinase
risk assessment
human health