Self-reported quality of life in symptomatic and asymptomatic women with X-linked adrenoleukodystrophy.
Lisa SchäferHannes RoickeChrista-Caroline BergnerWolfgang KöhlerPublished in: Brain and behavior (2023)
Symptomatic women with X-ALD present with physical and psychological co-morbidities significantly reducing individuals' quality of life. The findings emphasize the need to develop new multi-disciplinary treatment options tailored to women's specific needs.