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ATTRv amyloidosis Italian Registry: clinical and epidemiological data.

Massimo RussoLaura ObiciIlaria BartolomeiFrancesco CappelliMarco LuigettiSilvia FenuTiziana CavallaroMaria Grazia ChiappiniChiara GemelliLuca Guglielmo PradottoFiore ManganelliLuca LeonardiFilomena MySimone SampaoloChiara BrianiLuca GentileClaudia StancanelliEleonora Di BuduoPaolo PacciollaFabrizio SalviSilvia CasagrandeGiulia BisogniDaniela CalabreseFiammetta VanoliGiuseppe Di IorioGiovanni AntoniniLucio SantoroAlessandro MauroMarina GrandisMarco Di GirolamoGian Maria FabriziDavide PareysonMario SabatelliFederico PerfettoClaudio RapezziGiampaolo MerliniAnna MazzeoGiuseppe Vita
Published in: Amyloid : the international journal of experimental and clinical investigation : the official journal of the International Society of Amyloidosis (2020)
We presented an epidemiological study based on collaboration among referral centres for ATTRv amyloidosis spread in all the Italian territory, using web-based Registry. It provided a detailed map of the regional distribution of the disease. The increased awareness of the disease among general practitioners and medical specialists has contributed to reduce the diagnostic delay and the rate of misdiagnosis. The Registry will allow to collect also future information about clinical and instrumental follow-up.
Keyphrases
  • healthcare
  • primary care
  • multiple myeloma
  • electronic health record
  • big data
  • current status
  • machine learning
  • health information
  • high density
  • artificial intelligence