Factors affecting pathways to care for children and adolescents with complex vascular malformations: parental perspectives.
Bryan A SiskAnna KerrKatherine A KingPublished in: Orphanet journal of rare diseases (2022)
Parents of children with VMs report multiple factors that facilitate or impede their ability to provide their child with optimal care. These factors represent possible targets for future interventions to improve care delivery for families affected by VMs.