The value of using patient-reported outcomes for health screening during long-term follow-up after paediatric stem cell transplantation for nonmalignant diseases.

Joëll E BenseNicole GuilonardFemke ZwagingaAnne M StiggelboutMarloes LouwerensHilda MekelenkampArjan C LankesterArwen H PieterseAnne P J de Pagter

Published in: Health expectations : an international journal of public participation in health care and health policy (2023)

This study included patients as participants. Caregivers were approached if patients were below a certain age. Additionally, preliminary results were shared with all patients (including nonparticipants) during a patient conference day.

Keyphrases

end stage renal disease
patient reported outcomes
ejection fraction
stem cell transplantation
newly diagnosed
chronic kidney disease
prognostic factors
peritoneal dialysis
healthcare
emergency department
mental health
public health
intensive care unit
palliative care
climate change
childhood cancer