Assessing the impact of privacy-preserving record linkage on record overlap and patient demographic and clinical characteristics in PCORnet®, the National Patient-Centered Clinical Research Network.
Keith MarsoloDaniel KiernanSengwee TohJasmin PhuaDarcy LouzaoKevin HaynesMark G WeinerFrancisco AnguloCharles BaileyJiang BianDaniel FortShaun J GrannisAshok Kumar KrishnamurthyVinit NairPedro RiveraJonathan SilversteinMaryan ZirkleThomas CartonPublished in: Journal of the American Medical Informatics Association : JAMIA (2022)
This project was one of the largest linkage efforts of its kind and demonstrates the potential value of record linkage. Linkage between Partners may be most useful in cases where there is geographic proximity between Partners, an expectation that potential linkage Partners will be able to fill gaps in data, or a longer study timeframe.