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Caregiver burden in pediatric dialysis: application of the Paediatric Renal Caregiver Burden Scale.

Abbie BauerEliza BlanchetteCortney J TaylorAaron G Wightman
Published in: Pediatric nephrology (Berlin, Germany) (2021)
This study found that dialysis caregivers experience significant caregiver burden and demonstrates the utility of the PR-CBS in an American population. We found higher burdens among HD caregivers, younger children, and married caregivers. While these findings must be replicated on a larger scale, they suggest possible areas for targeted interventions to improve the quality of life of children with kidney failure and their families. A higher resolution version of the Graphical abstract is available as Supplementary information.
Keyphrases
  • palliative care
  • chronic kidney disease
  • young adults
  • end stage renal disease
  • risk factors
  • emergency department
  • intensive care unit
  • physical activity
  • peritoneal dialysis
  • social media