All your data (effectively) belong to us: data practices among direct-to-consumer genetic testing firms.

Linnea Irina Laestadius Jennifer R RichPaul L Auer

Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2016)

Our analysis shows that DTC-GT companies do not consistently meet international transparency guidelines related to confidentiality, privacy, and secondary use of data.Genet Med advance online publication 22 September 2016.

Keyphrases

big data
electronic health record
health information
primary care
healthcare
data analysis
artificial intelligence