Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers.
Robert Michael CroninTilicia L Mayo-GambleSarah-Jo StimpsonSherif M BadawyLori E CrosbyJeannie ByrdEmmanuel J VolanakisAdetola A KassimJean L RaphaelVelma M MurryMichael R DeBaunPublished in: BMC hematology (2018)
Individuals with SCD and their caregivers want access to guidelines through multiple channels, including technology. Guidelines written for health care providers can be adapted to be patient-centered using Community-engaged research involving providers and patients. These patient-centered guidelines provide a framework for patients to discuss their medical care with their health care providers.