Quality of life and its contributors among adults with late-onset Pompe disease in China.

Shanquan ChenJingxuan WangJianfeng ZhuRoger Yat-Nork ChungDong Dong

Published in: Orphanet journal of rare diseases (2021)

Adult Chinese patients with LOPD had a lower physical health and QOL compared to their counterparts with other RDs. Being employed was found to affect the QOL of adult Chinese patients with LOPD in almost all dimensions. Encouraging adult Chinese patients with LOPD to be socially active and help them become more involved in social life might improve their QOL.

Keyphrases

late onset
early onset
mental health
healthcare
public health
childhood cancer
risk assessment
social media