Translation, psychometric validation, and baseline results of the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric measures to assess health-related quality of life of patients with pediatric lymphoma in Malawi.
Katherine D WestmorelandBryce B ReeveAmy AmuquandohToon van der GrondeOlivia ManthaluHelena CorreiaChristopher StanleySalama ItimuAnde SalimaMary ChikasemaPaula WardAtupele MpasaStella WachepaIdah MteteMercy ButiaMary ChaselaMary MtundaPeter WasswaSteven MartinNader El-Mallawany KimPeter KazembeSatish GopalPublished in: Pediatric blood & cancer (2018)
Translation and cultural validation of the PROMIS-25 into Chichewa for Malawi was successful. Baseline HRQoL for patients with pediatric lymphoma in Malawi is poor for all domains except peer relationships. This emphasizes an urgent need to address HRQoL among children undergoing cancer treatment in SSA using self-reported instruments validated within the local context.
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