Everyday life experiences of spouses of patients who suffer from pulmonary arterial hypertension or chronic thromboembolic pulmonary hypertension.
Bodil IvarssonTrygve SjöbergRoger HesselstrandGöran RådegranBarbro KjellströmPublished in: ERJ open research (2019)
The spouses were only partly satisfied with their life situation. To support the spouse's participation, the PAH/CTEPH team should encourage the patient to bring their spouse along, and offer them the opportunity to participate in the contacts with healthcare and provide information on an individual family perspective.