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The body as an obstacle and the "other". How patients with chronic inflammatory bowel diseases view their body, self and the good life.

Anke ErdmannChristoph Rehmann-SutterFlorian SchrinnerClaudia Bozzaro
Published in: BMC medical ethics (2024)
We conclude with the insight that the multi-dimensional approach based on Foot's concept of a good life is well-suited as a basis for investigating the quality of life of people with IBD. Interviews based on this concept produced results that go beyond the understanding of health-related quality of life (HRQoL). Additionally, we offer some considerations about patients' opportunities for achieving a good life and suggestions for further developing patient reported outcome scales.
Keyphrases
  • patient reported outcomes
  • end stage renal disease
  • ejection fraction
  • chronic kidney disease
  • prognostic factors
  • peritoneal dialysis