Patient understanding of genetic information influences reproductive decision making in retinoblastoma.

Alison FosterL BoyesL BurgessS CarlessV BowyerH JenkinsonM ParulekarJ AinsworthJ HungerfordZ OnadimM SagooE RosserM A ReddyT Cole

Published in: Clinical genetics (2017)

We are concerned that individuals may be making life choices based on insufficient information regarding risks of retinoblastoma and reproductive options. We suggest that improvement in transition care is needed to enable individuals to make informed reproductive decisions and to ensure optimal care for children born at risk of retinoblastoma.

Keyphrases

healthcare
palliative care
quality improvement
health information
pain management
affordable care act
gene expression
gestational age
risk assessment
climate change
human health
social media
preterm infants
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