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Needs and Experiences With Health Care Providers of Adult Rare Disease Patients and Caregivers of People With Rare Diseases: Protocol for a Qualitative Study.

Tina ČerneEva TurkSpela MirosevicDanica Rotar Pavlič
Published in: JMIR research protocols (2024)
PRR1-10.2196/53362.
Keyphrases
  • healthcare
  • end stage renal disease
  • chronic kidney disease
  • ejection fraction
  • newly diagnosed
  • palliative care
  • prognostic factors
  • social media
  • health insurance