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Research involving adults lacking capacity to consent: a content analysis of participant information sheets for consultees and legal representatives in England and Wales.

Victoria ShepherdFiona WoodRichard GriffithMark SheehanKerenza Hood
Published in: Trials (2019)
Despite undergoing ethical review, study documents lacked essential information, incorrectly used terminology, and conflated professionals' clinical and representation roles. Future recommendations include ensuring proxies are provided with adequate and accurate information which complies with the legal frameworks. Further research is needed to explore the information and decision-making needs of those acting as consultees and legal representatives.
Keyphrases
  • decision making
  • health information
  • mass spectrometry