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OpenNotes After 7 Years: Patient Experiences With Ongoing Access to Their Clinicians' Outpatient Visit Notes.

Jan WalkerSuzanne G LeveilleSigall K BellHannah ChimowitzZhiyong DongJoann G ElmoreLeonor FernándezAlan FossaMacda GerardPatricia FitzgeraldKendall HarcourtSara L JacksonThomas H PayneJocelyn PerezHannah ShucardRebecca StametzCatherine M DesRochesTom Delbanco
Published in: Journal of medical Internet research (2019)
In this first large-scale survey of patient experiences with a broad range of clinicians working in practices in which shared notes are well established, patients find note reading very important for their health management and share their notes frequently with others. Patients are rarely troubled by what they read, and those traditionally underserved in the United States report particular benefit. However, fewer than half of clinicians and patients actively address their shared notes during visits. As the practice continues to spread rapidly in the United States and internationally, our findings indicate that OpenNotes brings benefits to patients that largely outweigh the risks.
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