Routinely measuring symptom burden and health-related quality of life in dialysis patients: first results from the Dutch registry of patient-reported outcome measures.
Esmee M van der WillikMarc H HemmelderHans A J BartFrans J van IttersumJudith M Hoogendijk-van den AkkerWillem Jan W BosFriedo W DekkerYvette MeulemanPublished in: Clinical kidney journal (2020)
The first results show low average response rates with high variability among centres. Dialysis patients experienced a high symptom burden and poor HRQoL. Using PROMs at the individual patient level is suitable and may improve patient-professional communication and shared decision making. Further research is needed to investigate how the collection and the use of PROMs can be successfully integrated into routine care to improve healthcare quality and outcomes.