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Assessment of patients' baseline cystic fibrosis knowledge levels following translation and adaptation of the CF R.I.S.E translation program into Turkish.

Merve Selcuk BalcıYasemin GökdemirEla Erdem EralpAlmala Pınar ErgenekonCansu Y I L M A Z YegitMuruvvet YanazAynur GulievaMine Yüksel KalyoncuSeyda KarabulutNeval Metin CakarBurcu UzunogluGamze TastanDamla KocamanÖzge Keniş CoşkunIlknur GorgunR Randall MessierPamela MertzFazilet KarakocBülent Karadag
Published in: Pediatric pulmonology (2024)
MU CF Center in Turkey implemented the CF S.O.B.E (Responsibility, Self-care, Independence, and Education in Turkish) program. The center aims to make the program a regular practice and expand collaboration with adult clinics. Future studies will assess its long-term impact and applicability in different health settings. The final goal is to disseminate the program's resources and promote structured transition practices across the country.
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