Last months of life of people with intellectual disabilities: A UK population-based study of death and dying in intellectual disability community services.
Stuart ToddJane BernalJulia ShearnRhian WorthEdwin JonesKathy LowePhil MaddenOwen BarrRachel Forrester JonesPaul JarvisThilo KrollMary McCarronSue ReadKatherine HuntPublished in: Journal of applied research in intellectual disabilities : JARID (2020)
Death is not a common event in intellectual disability services. A major disadvantage experienced by people with intellectual disabilities was that their deaths were relatively unanticipated. People with intellectual disabilities living in supported living settings, even when their dying was anticipated, experienced poorer outcomes.