The impact of the COVID-19 pandemic on Fabry Disease Patients: an examination of Mood Status, Therapy Adherence, and COVID-19 infection.
Cebrail KaracaMevlut Tamer DincerSeyda Gul OzcanBetul SaracSaffa AhmadzadaSelma AlagozAlev Bakır KayıErtugrul KıykımSinan TrabulusNurhan SeyahiPublished in: Orphanet journal of rare diseases (2022)
We found that FD patients were more resilient to the negative psychological effects of lockdown. Traumatic growth may be an important factor in explaining this finding. Government-supported home therapy programs might be beneficial for FD patients to increase the therapy adherence.
Keyphrases
- end stage renal disease
- newly diagnosed
- ejection fraction
- chronic kidney disease
- peritoneal dialysis
- healthcare
- prognostic factors
- stem cells
- type diabetes
- spinal cord injury
- adipose tissue
- heart failure
- mesenchymal stem cells
- metabolic syndrome
- physical activity
- bipolar disorder
- replacement therapy
- cell therapy
- smoking cessation
- hypertrophic cardiomyopathy
- weight loss