Standards of care and educational gaps in adult cystic fibrosis units: a European Respiratory Society survey.
Almudena Felipe MontielAntonio Álvarez FernándezMario Culebras AmigoFrancesco BlasiAndrea GramegnaStuart ElbornAlex Robert HorsleySusan MadgeDaiana StolzNathalie TabinCarine PannetierEva PolverinoPublished in: ERJ open research (2024)
This study underscores the urgent need to standardise care across these centres in order to minimise disparities in terms of available resources and training with a particular emphasis on adult pwCF who are becoming more numerous and showing different needs with ageing. The changing landscape of CF in adulthood will require constant monitoring to ensure proper adaptation of the current model of care.