Too little too late? Communication with patients with congenital heart disease about challenges of adult life.
Lisa X DengLacey P GleasonKatherine AwhAbigail May KhanDavid DrajpuchStephanie FullerLeah A GoldbergChristopher E MascioSara L PartingtonLynda TobinAdrienne H KovacsYuli Y KimPublished in: Congenital heart disease (2019)
Adults with CHD commonly face employment, health insurance, and family planning challenges. However, discussions about these matters occur with less frequency than recommended and at older ages than patients would prefer. Communication about such issues should be incorporated into a comprehensive educational curriculum for adolescents during the process of transition to adult care.
Keyphrases
- health insurance
- congenital heart disease
- affordable care act
- end stage renal disease
- physical activity
- ejection fraction
- newly diagnosed
- quality improvement
- healthcare
- young adults
- chronic kidney disease
- palliative care
- childhood cancer
- mental illness
- middle aged
- patient reported outcomes
- mental health
- chronic pain