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Characteristics of available studies and dissemination of research using major clinical data sharing platforms.

Enrique VazquezHenri GouraudFlorian NaudetCary P GrossHarlan M KrumholzJoseph R RossJoshua D Wallach
Published in: Clinical trials (London, England) (2021)
Across six prominent clinical data sharing platforms, information on studies and request metrics varied in availability and format. Most data requests focused on secondary analyses and approximately one-quarter of all approved requests publicly disseminated their results. To further promote the use of shared clinical data, platforms should increase transparency, consistently clarify the availability of the listed studies and supporting documentation, and ensure that research findings from data requests are disseminated.
Keyphrases
  • electronic health record
  • big data
  • social media
  • health information
  • healthcare
  • data analysis