Being affiliated to a cystic fibrosis centre is important for parents' everyday life.
Pia Bonde NielsenHanne Vebert OlesenClaus Sixtus JensenPublished in: Acta paediatrica (Oslo, Norway : 1992) (2022)
The parents' experiences highlighted essential elements that should be implemented to optimise the patient care pathway as they are fundamental to parents' ability to cope with the new living conditions.