Login / Signup

Being affiliated to a cystic fibrosis centre is important for parents' everyday life.

Pia Bonde NielsenHanne Vebert OlesenClaus Sixtus Jensen
Published in: Acta paediatrica (Oslo, Norway : 1992) (2022)
The parents' experiences highlighted essential elements that should be implemented to optimise the patient care pathway as they are fundamental to parents' ability to cope with the new living conditions.
Keyphrases
  • cystic fibrosis
  • pseudomonas aeruginosa
  • mental health
  • lung function