A scoping review exploring cure definitions and language for inherited hemoglobinopathies.

Marilyn S Baffoe-Bonnie K Jameson Floyd Alicia A Livinski Christine Grady

Published in: Genetics in medicine open (2023)

We frame the significance of our findings by discussing their scientific, ethical, and social implications and focus on the need for precise and clear terminology that centers lived experience and acknowledges the interplay between scientific and lay expertise and perceptions.

Keyphrases

healthcare
primary care
autism spectrum disorder
mental health
decision making